VHL or Von Hippel-Lindau disease is a genetic form of cancer. VHL patients battle a series of tumors throughout their lives. The VHL gene is involved in many other forms of cancer. Curing VHL is one step closer to curing cancer.
The charity aims to:
Raise funds for research into von Hippel-Lindau syndrome (VHL) and similar genetic conditions like Hereditary Leiomyomatosis and Renal Cell Cancer (HLRCC) and Birt-Hogg-Dubé Syndrome (BHD).
Support those persons who are receiving or have received treatment for VHL and similar genetic conditions like HLRCC and BHD, and their families and carers.
Raise awareness in all matters concerning VHL and similar genetic conditions like HLRCC and BHD.
The work they do is invaluable in the support of people and their families with these conditions.